Single-domain registries and cohorts — autism, Alzheimer's, congenital heart disease, immune-mediated disease, regional populations. Where deep specialist data lives.
A NIH database aggregating autism-related research data (genetic, imaging, behavioral, clinical) across studies for shared analysis. The broader NIMH Data Archive hosts similar databases for other psychiatric conditions.
A large public-private cohort database with longitudinal imaging, biomarker, genetic and clinical data on Alzheimer's disease, used by thousands of researchers worldwide.
AlzForum curates research news and a mutations database for genes implicated in Alzheimer's; complemented by NIA-sponsored resources like NIAGADS, the National Institute on Aging Genetics of Alzheimer's Disease Data Storage Site.
The UK's National Congenital Heart Disease Audit and the U.S. Society of Thoracic Surgeons registries collect outcomes for cardiac procedures. Analogous national registries exist worldwide for benchmarking and quality improvement.
Run by IHME, GBD quantifies death and disability from hundreds of diseases, injuries and risk factors across countries and over time — the standard source for comparative epidemiology.
A specialised database compiling information on genetic diseases reported in the Indian subcontinent, including population-specific mutations.
An NIAID-funded immunology data resource hosting clinical and mechanistic immunology study data, including immune-mediated disease cohorts.